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Showing posts with the label Proressive Care

1/11/09 - One Tough Cookie!!!

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Can you tell Kayleigh doesn�t like to lay on her back anymore? Actually, she was fine for about 30 minutes, but soon wanted to be put back on her tummy. She is so picky because she used to never like being on her tummy. I guess she likes to keep us on our toes, which goes along with everything else she does or doesn�t do. Her file is going to be named the �Kayleigh�s Way� file and her WHOLE file is going to be a �case study� for other doctors to be cautious about. It will read, �Handle with care, unpredictable baby syndrome� Speaking of care, we are meeting Thursday with ALL the neonantologists, nurse practitioners, cardiologists, respiratory therapists, pulmonologists, gastrointologists, and nurses who are involved with Kayleigh�s care. It seems communication amongst some of them have been lost or confusing, so we are going to clear up this game of telephone really quick. It is tough when there are so many people involved and so many decisions have to be made. Since we are dealing wit...

1/8/09 - See It To Believe It!!!

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When I go on and on about Kayleigh and how close to death she was two weeks ago, there is only so much detail someone can describe to implant that image in someones mind of how scary that situation was. But, to show the people first hand what it was like to see her in such a rough state compared to what she looks like today, will make you rejoice in the Lord that He has performed a miracle in our little girl. You will notice in this first video a huge difference in Kayleigh appearance, but not only that, you will notice the difference in the atmosphere itself. She is swollen beyond recognition, but it is noisy from her machines beeping, there are two nurse working at once, and she has wires and lines coming out from everywhere. Only to compare it to something else will give you the true definition of her progress. This video from yesterday is the complete opposite. Think about all the same things I mentioned above, mainly appearance and noise level and you will see the difference in wh...

1/6/09 - THANK YOU!

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Can you believe the progress Kayleigh has made over the past couple days? She has been fighting so hard and doing so well! We are so very proud of her and we have no doubt in our mind that she is going to continue to make great progress and get herself out of that hospital. Kayleigh is currently satting in the mid 90's where she is supposed to be and she is down almost as far as you can go on the vent settings. Her oxygen is set at room air or just above and there is next to none when it comes to the amount of pressure being pumped through that vent tube and in to her lungs. Actually, she is breathing over the vent 99% of the time which is an awesome sign. The scary part is the muscle/tissue in her lungs that seems to fail her when the vent tube is removed. After doing so well on the vent, the doctors proceeded to remove the vent tube (extubate) from her throat. Once they did this, somewhere in her airways decided to give out and collapse, cutting off all air supply to her lungs. K...

1/3/09 - Great Start!!!

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These were a couple photos that I took over the last two days. Don't you just love her ear muffs?!?! First and foremost, I am loving Twitter so you all can get the updates on the blog and Facebook on a regular basis. I will still continue to update the blog every couple days, but mainly to recap and show photos. If you haven't joined up, go to the right tool bar to follow the daily updates by reading along or getting text messages to your phone This has been an awesome start to a brand new year. The year 2008 is over with and hopefully so is all the drama that came with it. Kayleigh continues to surprise us all with her strength as she tackles these issues like a champ. Just the other day, she was having another hypertensive episode that was so intense, her heart rate was dropping because it could not keep up with the massive amounts of pressure coming from her lungs. Falling deeper and deeper in to trouble caused the doctors cancel the jg-tube procedure, but we all know who re...