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We are still waiting to hear back the final verdict as to whether Kayleigh is going to need a trach, but all the votes are point in to the direction of "yes" and we are all prepared if that is the case. After learning more about the trach and reading up on all the great information you all have sent us, it comforts me in knowing that this is the very best thing for her. She will not only be able to breath better, but she will be able to focus on other aspects that go along with early childhood development. We are more than happy to say that the trach will speed up her process of coming home because she would not be able to come home with the ET-tube down her throat. Yes, she still needs to tackle the reflux issue, but they may do either the g-tube/nissen or the jg-tube at the same time as the trach. After that, the doctors need to decide whether or not they want to send her home on the Flolan for her pulmonary hypertension or try and wean her off of it. There is not much else...

I guess Kayleigh has her own way of showing us that this procedure was not supposed to happen. Late last night, before Aimee and I went to bed, Kayleigh had an hypertensive episode. She dropped her sats fairly low, but never spiraled out of control like she normally does. Kayleigh must be getting used to some of the sedation medication because they had to bump up her dosage and switch over to Morphine to really get her to relax. She slowly recovered back to normal. Around 6:30 in the morning, we got a phone call that she had another episode, but this time she spiraled out of control and needed to be paralyzed along with more sedation medication. During this episode, she was not responding like normal and she is currently on a much higher pressure control setting at 100% oxygen. The x-ray came back showing her left lung is collapsing. They have started some treatments to fix it and hopefully Kayleigh can turn things around. We are not sure if this is pneumonia coming back or her elevate...