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Look at your hands right before you. I am looking at mine. You see hands that are soft, gentle, caring, loving, but powerful hands that you use to hold your child tight while also using those same hands to lift up to our God in prayer. These hands of mine, they hold my family's hands every chance I get. They touch the face of my beautiful wife, right before I kiss her. They cradle my sweet Kayleigh's tiny body, while she sleeps comfortably and peacefully. These hands fit perfectly together when I kneel at my bed, praying the Lord will heal our child and fix her sick body. As you type or click at your mouse tonight, look at your precious hands. Know that your hands can do so much for others that you love. What are you going to do with your hands tonight? Are you going to walk in to your child's room and brush through their hair, feeling blessed that your child is alive and well? Are you going to sit next to your husband or wife, and hold their hand, comforting them with your...

Before I update you on Kayleigh and show you a few new pics, I wanted to let you know about something real quick. Remember our guest blogger, Brent Riggs? The guy who twisted my arm Monday and put up that wonderful post for us? He�s been working on a book on for over four years, an incredible story he told me about when I went to stay for a week at his home. The book is called � Terrorist to Evangelist : The True Story of Kenneth McClinton �. I was talking to him last night and he mentioned it will finally be available today. Here�s what Brent wrote me about the story: �Ken was a terrorist. He killed people, bombed things and lived a life of violence and hate. In solitary confinement in prison, all alone with an old Bible, God transformed Ken. It is a modern day �Damascus road� conversion that took a man from being a killer to a believer, from violence to love, from terrorism to evangelist. Ken�s life is a fascinating story and it is nothing short of miraculous that he even lived to se...

Twenty-five minutes have gone by on the clock while I sit here and think of the best way to thank you all for your support and I still can't find the right words to say. Not to mention that I am typing with one arm because Brent twisted my other arm right off, begging to write on my blog to reach out to others to help our family. Brent you are a complete blessing and I am thankful I prayed, listened to God, and let you post. Brent, I am thankful God has blessed us with such an incredible friend such as yourself. If you missed Brent's very generous post, read it ( HERE ). I really did not want to let him write for us because every single one of you have helped us out so much before. Whether you prayed for us, donated your hard earned money or supported us with your love, we are forever grateful. In just one full day, you all have helped lift such a huge burden off of our backs. Dealing with Kayleigh's situation is one of the hardest thing any parent should have to go through...

Hi friends, this is Brent Riggs, guest blogging for Adam and Aimee today. They didn�t ask me too, I begged them to let me. First, I know many of you know me and know that Adam and I are good friends, but a lot of you have no clue who I am. Because of what I�m writing today, it is prudent to give you a quick �who is this guy?� My wife and I have a blog at www.riggsfamilyblog.com . We have seven children, three are internationally adopted, two from Guatemala, one from Ethiopia. Our four year old from Guatemala, Abby, has Leukemia, and four times in the past year we spent days at a time unsure if she would survive. So we know a little bit about how Adam and Aimee are feeling, and what they are going through (actually we know a LOT about it). Adam and I have become good friends over the months. I�ve been honored and blessed to have him stay in our home, and to be able to offer spiritual encouragement and advice. You�ll find my ministry site at http://www.seriousfaith.com/ and my professio...

God Bless,

"I sat and watched as my beautiful wife held Kayleigh in her arms. Through the tears in our eyes, we watched her sleep peacefully on her soft pink boppy pillow. There were no words spoken, but heartbreaking emotions raced through our bodies. Seeing this amazing miracle from God, loved by millions across the world, made us realize how lucky we are to have been blessed with 10 amazing months of love. I laid my head next to hers, smelling her soft fuzzy head, I closed my eyes to pray and fell sound asleep next to her. For once, I felt as if nothing was wrong and no troubles to stress. We laid comfortably together, enjoying the closeness as a Father and his little girl should feel every single night. I've never gotten the chance to be so close and I may never get that chance again until we meet again in heaven someday. She is my precious sweetheart and it will be so hard to let her go when that day soon comes." We are not sure if Kayleigh's traumatic and unforeseen circum...

First off, I want to apologize for not posting a newer update lately. I am sure you all have been itching for an update and quite honestly, we are having a really tough time right now dealing with this. Kayleigh had a repeated EEG this morning and the results on her brain waves have not changed. Kayleigh remains in a state of a flat reading and besides being able to breath on her own and maintain a stable position otherwise, she shows no other signs of improvement. It breaks my heart to say that we have no idea where this recent news will lead us, but the doctors feel with the unchanged brain wave diagnosis, Kayleigh will not recover from this traumatic incident. The CT-scan showed that the lack of blood/oxygen loss happened within the last 12 days somewhere, so this happened either during or shortly after the surgery. We will continue to see if there are tests to tell us if she had a stroke or something else to give us some kind of answer and understanding. Aimee and I are in complete...

After a long and emotional day, we were able to gather some information about Kayleigh's prognosis to pass along to everyone. A CT-scan was completed this afternoon to determine what may be the cause to Kayleigh's shocking lack of brain functions. It appears there was a lack of blood and/or oxygen supply to the brain during or shortly after her surgery this past week. The other option is that Kayleigh had a pre-existing condition that worsened with the surgery. However, the latter of the two can be cancelled out as there were no obvious issues that can relate to the problems she is having now. Being that Kayleigh had two blood transfusions this past week and a very low blood pressure number tells me that the problem may be with the lack of oxygen/blood to the brain, but no one is for certain at this time. The doctors still want to see how her body reacts with time, but Aimee and I are pushing for other tests to be done in case there is a reason and it could be something that ma...

We are sitting here thinking of the right words to say, but there are never the right words to say when your life has been turned upside down in a blink of an eye. "I am praying, Lord, that you will speak through me and deliver this message to shine a light on others for them to show you how special Kayleigh is to all of us and how we are not ready to say goodbye." We need your prayers right now! Something terrible is going on with Kayleigh and no doctor or specialist can lay a finger on what has caused this to happen. Our hearts are breaking right before our eyes and we are in complete shock at the moment. Please help us. As you all know, post surgery seemed to go as expected. Normally, it gets worse before it gets any better, but Kayleigh was showing great signs of recovery. Although, after a couple days and things progressing normally, sweet Kayleigh is not waking up anymore. She is no longer on the Nitric or any pain medication. She is on very low settings beyond the expe...

4/21- Please pray for Stellan who went into surgery this morning. Http://www.MycharmingKids.net

Ya know, I was sitting here thinking and I thought of a great little project that I would love to put together for Kayleigh and beyond that, it would be awesome to just see a video of all the photos. I have seen comments come through from all over the world and I have looked at Kayleigh's World Map to see where everyone is located. We recognize names, but we don't have faces to go with many of those names. It would be a great opportunity for us to see who you are and where you are from. Here is how it works. Take a photo of you, your family, your child, a landmark or whatever while holding a sign that says: Praying for Kayleigh in... (and of course put your city/state or country) If you haven't seen my good friend, Jennifer's ( McKmama ) blog, and how she does it for sweet Stellan, it is similar except that we just want photos of you with your sign reading: "Praying for Kayleigh in...." Once I gather all the photos/location signs, I would like to put together...

4/20 - Kayleigh is still making slow, but good progress. She is starting to wake up a little and open her eyes every now and then.

4/19 - Kayleigh's making great progress. They started to wean her off the Nitric. Her swelling is way down & her blood pressure is great. We are so excited!!!

Just wanted to thank you all for the great comments on the videos. It was a blessing to bring you all in a little closer to our family. If you missed the videos, check out the last post and watch how our day ( yesterday ) went down. Kayleigh-bug, little munchkin, petunia, little miss thang, heart attack giver is doing better and better as the hours go by. I didn't want to alarm anyone, but last night was scary as all get out. Just after I posted the "first/failed attempted" videos, we got a call from one of the nurse practitioners telling us Kayleigh's body was not accepting the crazy amount of pain medication they were pumping her with and she had a pulmonary hypertensive episode to where they could not get her sats back up without putting her on the Nitric Oxide. If you all remember how "December" went down, you will remember NO2 all too well. Basically, NO2 was a life saver. Needless to say, with her oxygen and vent settings up as high as possible, enough...

Let's try this again. Now I have got the videos working and we are ready to go... Yesterday was one of the longest days of our lives and I still have to somehow capture it all again just perfect for you in this post. Well, maybe not... Aimee and I decided to create a VLOG (Video blog), starting Wednesday night and all the way through the day yesterday (Thursday) to share with everyone a day in the Freeman family shoes. It is not top notch quality but hey...it works. We need to learn more about editing, but that will come with time. I hope you will enjoy getting to see some behind the scenes with our family. Also, we would like to warn everyone that Kayleigh's after surgery is not intended to show Kayleigh at such a vulnerable state, but to let you realize how serious and intense this journey has been. It is to open people's eyes who need to feel the impact of such a world many of us come to unfortunately know so well. After all, our whole goal is to help make a difference ...

5:22 - Aimee, the kids and I are on our way to speak at a March of Dimes event and help raise awareness for these little miracles.

3:26pm - Picking the kids up from school. Ready to play with them, so we can laugh & relieve some stress. Kayleigh is somewhat stable still.

2:03pm - Please pray this recovery is quick so she can get back to normal. It's hard to see her like this. She has 6 more scars to tell her story.

2:00pm - Poor Kayleigh. She's not feeling too good. Her whole body has swelled up pretty bad, and her sats are struggling to stay up.

1:41 - Just got the call. On our way up to see Kayleigh back at her bedside.. Woo Hoo!

1:30pm - We should be getting a call any minute to go up to see Kayleigh. We are so anxious to see her and give her some smootches.

12:30pm - Surgery is over and was a success! Recovery will be tough on her, but dr felt the procedure went better than expected. Whew!!!

11:00am - Drs are finished with the G-tube, Nissen & biopsy. They're finishing the hernias & all they will have left is the central line.

10:37am - So far so good. Moving right along. Kayleigh is doing great, but her parents are a nervous wreck :)

9:55 - They have taken Kayleigh into to surgery and will begin shortly. Updates to come as we receive them. Please pray things go smooth.

8:05 - They are running behind and have not taken Kayleigh down to surgery yet. She is smiling more than ever and looks just precious.

7:15am - Good morning. We are on our way to the hospital to see Kayleigh off to surgery. Thank you for all of your prayers.

Before I kick of this weeks Thoughtful Thankful Thursday, I wanted to thank you all for your prayers and please continue to pray as the surgeries will begin at Thursday, 8:00am (EST). I will be updating through Blogger/Twitter/Facebook all morning to keep everyone posted. Please say a prayer, not only for Kayleigh, but for all the doctors and staff who are involved with the procedures. Thank you so much! This week is going to be different and I would like to see if by doing things this way, we will get a lot more people involved to share their stories. . Okay, here is how our " Thoughtful Thankful Thursday" works. This week, I would love to hear about someone special in your life who you are thankful for and why. This will be a great way to let everyone know how awesome that person is in your life and I am sure it will make them feel all warm and fuzzy too. Whatever you are thankful for, I want you to spill your hearts out like never before. God has blessed us with so many ...

Surgery @ 8:00am (EST) - Procedure consists of G-Tube, Nissen, Bilateral Hernia Repair & a new Central Line Placement. Please pray for Kayleigh and the doctors.

Great News!!! Blogger just updated to where I can update the blog by phone instead of just being able to do Twitter and Facebook. Sweeeeet!

I am in heaven after spending some quality time with Kayleigh tonight by myself. Don't get me wrong, I love having Aimee with me when we go to the hospital, but there are those rare times where I get to spend one on one time with my sweet daughter and tonight was one of those times. Kayleigh is doing much much better and I am pleased to say that "hopefully" she just had a cold that caused her to act up this past week. Whoever has been following Kayleigh from the beginning will know that she can handle the tough times like a champ, but when it comes to something small, she hits rock bottom. Kayleigh is on her way back to full feeds. They started her the other day and are moving up quickly. Her belly is handling it quite well. It has enlarged a little, but it is soft feeling which is normal for her. She is no longer on any antibiotics and is not producing any yellow/green mucous out of her nose/trach. The great news is Kayleigh's recent Echocardiogram has showed that Ka...

As of right now, surgery is scheduled for Thursday morning. They wanted to do the procedures at 8:00am, but we are checking to see if a later time that morning is possible because the kids have to be taken to school. If it changes, I will let you know so everyone can be praying. Kayleigh is doing really well and she is tolerating her feeds. Her belly has blown up a little, but nothing more than her norm. It is nothing to be concerned about because she is still having stools and her bowel sounds are good. This weeks "Thoughtful Thursday" is going to be a little different than others. I am going to do a "Thankful Thursday" instead and thank someone who has impacted my life so much. If you are interested in joining in, just write a post and link it to our blog so others can see who you are thanking and why. This will allow those who are being thanked to feel blessed your life was impacted by theirs for the kindness or leadership they have given you. I am looking forwar...

Before I kick of this weeks Thoughtful Thursday, I wanted to give you an update on sweet Kayleigh. Our visit today was extra special and Kayleigh seemed to be in high spirits. After watching her sleep the whole visit yesterday, it was great to see her awake and batting at her play toys. Yes! She was grabbing at the toys hanging from her "clothes line" that streams across her bed. She has a rattle she especially loves where she will swipe at it or grab and try to shove in her mouth. It was beyond cute to watch her interact with it and such a blessing to prove even a bigger point that she sees her toys clear enough to locate with her hands. Some of the other tests have come back and it seems they want to chalk all this drama up to be a cold that she came down with. Honestly, with all the pollen going around and Charlotte, NC being a hotbed for dust and allergens, I wouldn't doubt it if the issues were caused by a several allergy attack. It seems that several nurses, family ...

Kayleigh is feeling better today, but not all the tests results have come back. She is acting more like herself and is not having as many secretions. Her sats are staying where they are supposed to for the most part and she isn't showing signs of discomfort. The cardiologist meeting is on Thursday, so we will know a little more about what they plan to do. I will be sure to update more as I get more information. Sorry this isn't much, but we haven't really gotten a whole lot of news either :) Thank you for your prayers and please keep them coming. God Bless,

After we got all that great news yesterday, the NICU roller coaster is at it again. We have not gotten official results back from all different tests, but Kayleigh started to go downhill yesterday and quick! They have not idea why this happened and they are taking all measures to figure it out. The only test that has come back yet is he RSV and that is negative. The ECHO showed Kayleigh's pulmonay pressures were elevated and her heart's right side was not functioning as strong as it normally is. The cardiologists are getting together for their weekly meeting on Thursday to determine whether or not to do another heart cath procedure to determine what is going on with her heart. Their fears are the heart may be causing this vicious cycle. To explain what happened, yesterday Kayleigh was doing great and then all of the sudden, she was coughing, spitting up and having mucousy drainage out of her nose and trach. Her sats dropped quickly and they had to increase her oxygen and pulmon...

For those who did not see my Tweet on Twitter or Facebook yesterday, Kayleigh's biopsy came back NEGATIVE for Hirschsprung's Disease. WOO HOO! We will still have to keep our eyes out and figure out what is going on with her belly, but this is a step in the right direction. Many of you posted comments on other possibilities, so we will be bringing those up to the doctors on Monday. Thank you so much!!! On another great note, one of our primary nurses (possibly two now) will be part of the staff that will take care of Kayleigh when she comes home. We are so pumped and excited to hear that. It will make this transition that much easier and exciting. We love our nurses so much that we were afraid of having to get to know and love someone new, so it is a blessing that we will have couple that already know Kayleigh really well and can be a strong advocate for her. Many of you know that having a new nurse or a nurse that doesn't know your child can be the most stressful part of ...

This is a quick post to let everyone know that Kayleigh had her biospy procedure this morning and we are waiting for the results. Please pray those results are negative for Hirschsprung's disease . We should get the results back within 24 hours, so hopefully tomorrow we will be able to post the news. Kayleigh is having another great day today and she handled the procedure like a champ. Thank you all for everything and God Bless,

Okay, today was a busy day and my head is spinning in a million different directions. Aimee and I have been faced with a tough decision, but we feel God is leading us in the right direction. We sat down with one of our neonatologists, our cardiologist NP, our primary nurse and a couple other NP's and discussed a new medication that will take place of Kayleigh's Flolan, which treats her Pulmonary Hypertension. The name of the medication is called Remodulin . Unlike the Flolan's three to five minute window in case something goes wrong with the central line, the Remodulin has a four hour window to fix the line. This will help us stay a little more calm when she comes home and we can get to the hospital in time if there is an emergency. Now here is where we need your prayers. Beyond the new medication CHOP (Children's Hospital of Philadelphia) mentioned, the main doctor there said they complete the Nissen procedure on all of their pulmonary hypertension neonates. We menti...