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Before I take you on a journey of the past 9 months, I wanted to tell you how Kayleigh is doing today. If you didn't follow my tweets on Twitter or Facebook the other day, Kayleigh's surgery was cancelled by a last minute belly issue. Her tummy blew up and she was having some serious diarrhea. Right now, Kayleigh's belly has reduced in size and it is soft. She had a great day today. The doctors are not sure when the surgery will be rescheduled. We have to coordinate between two surgeons as they are doing both the PEG placement and the bilateral hernia repair. They will be doing a biopsy of her intestines at that point too to determine what is going on with Kayleigh's belly problem. Okay, one of Kayleigh's prayer warriors posted a comment yesterday to post some photos of Kayleigh from each month over the past nine months. So, I thought it would be a good idea to do just that. I hope you enjoy :) Weighing only 13 ounces, Kayleigh was less than a week old. Measuring ...

If you have not signed up to follow me on Twitter, do so as I will be updating the surgery tomorrow and future posts. The link to get to Kayleigh's Twitter page is here: Kayleigh Freeman The great thing about it is you can set your cell phone up to get a text message from me every time I tweet. I update Twitter and Facebook whenever I submit a new post anyhow, so it may be good to add Twitter so you know when a new post arrives. This will keep you from watching the blog roll to see who submitted new posts. If you don't want to add the text messages to your phone (which you aren't required to when you sign up for a Twitter account) just go over to the right tool bar, a little ways down and you can see the updated tweets. I will be updating often tomorrow throughout the surgery to give you all updates as I get them. This will keep me from lugging my computer around to post every time I get some news. I can tweet from my cellphone, so it is as easy as that. Also, if yo...

Oh what a day! Finally we have narrowed down a time for Kayleigh's upcoming surgeries. Monday starting at 12:00, the doctors are going to perform a PEG placement surgery, then a bilateral hernia repair, and then they will do a biopsy of Kayleigh's bowels to test for a motility deficiency. Their thought is Hirschsprungs disease, so we will see if that checks out. We received an email from someone who has had similar problems with their child's belly blowing up, but were never able to figure out the problem. We plan to speak more in depth with them and get an understanding of what other tests to figure out where the underlying issue is. Like some of you had said, it may not be Hirschsprungs because she has been able to stool on her own without stimulation. So, hopefully your right and that is the case, but at least the biopsy will rule that out and we can move on to other possibilities. Please keep Kayleigh in your prayers Monday around 12:00 (EST) and pray that she will come...

Wow! I was off the other day when I put in a guestimate for how much donations came in. We are so blessed to announce that the total amount of donations that came in for the giveaway were $6,623. Thank you tons!!! We are so fortunate to have such a great support system through this trying time. I can't imagine where we would be if we didn't have you all to guide us through our hard times, help answer questions we have and contribute financially to help us get by. Every single one of you are such a true blessing. Please pray for Kayleigh, the Drs. and my sanity right now. Way back when Kayleigh had her gastrointestinal surgery to see what was wrong with her slow bowels, they said they were doing a biopsy of Kayleigh's intestines to determine whether or not the cause of the problem was Hirschsprung's Disease. The reason they were supposed to do that was because Aimee asked for it to be done and if I am not mistaken, I think one of you all mentioned it to us. Well, it ...

First of all, thank you again for everyone who entered the donation giveaway. Below are the winners of each package. You may click on the links beside each name to see what they won. Congratulations to everyone and God Bless!!! Package #1 - Cathy Sanden Package #2 - Kristine Fox Package #3 - Danyele Esterhaus Package #4 - Michelle Martin Referral Package - Carol Ann Nadeau This has been on very exciting week for the Freeman family and we are happy to share our fifth "Thoughtful Thursdays" event with you. We will be doing this every week and we would love for everyone to join in and do something nice for someone out there. Okay, here is how our "Thoughtful Thursdays" works. You all are going to go out in to this crazy world and do something EXTRA nice for someone else. You can do something nice for someone you love, someone you don't love, or someone you you have never had the chance to love and come back here to share about it each and every Thursday. God h...

Over the past couple days, we have been on hold with any type of surgery for Kayleigh's feeding situation. Kayleigh's belly started to blow up last week and with the fear of an infection, many tests were being done to catch whatever was causing this to happen. They stopped her feeds and then things started to fall apart quickly. The first thing that took place was bleeding in her trach, which could have been caused by numerous reasons. They feared the trach was a size too big or they feared Kayleigh was having bleeding in her lungs that was coming up in to her tubes. They could not lay a finger on what the issue was, but chalked it up to be minor rubbing on her trach site or in her esophagus. This problem happened twice. The second issue happened the other day when Kayleigh's Flolan central line backed up and she started to desat pretty low. They figured out the problem really quick and administered her Flolan through a syringe and it stopped the desaturation from happening...

NOW FOR A LITTLE FUN :) What is your favorite Hair-DO? 1) The Magnificent Comb-Over! 2) THE "Heeyya Baaaby" ELVIS? 3) The Miley's Dad - Mullet? 4) The EL-Natu-REL? (EL-Nat-Chew-Rel) 5) The Infamous UNI-Brow? LOL, Kayleigh is going to kill us when she sees this later. Ya think? We were having too much fun! Kayleigh is doing good and wishes you all a wonderful weekend. God Bless!

This has been on very exciting week for the Freeman family and we are happy to share our fourth "Thoughtful Thursdays" event with you. We will be doing this every week and we would love for everyone to join in and do something nice for someone out there. Okay, here is how our "Thoughtful Thursdays" works. You all are going to go out in to this crazy world and do something EXTRA nice for someone else. You can do something nice for someone you love, someone you don't love, or someone you you have never had the chance to love and come back here to share about it each and every Thursday. God has shown Himself through Kayleigh and we need to glorify Him in all that we do. We need to touch other people with our kindness and spread the love of God with Kayleigh's story to everyone we possibly can. When you deliver your good deed to someone, let them know that they were touched by Kayleigh and share her website with them, so they too can join in on Kayleigh's jo...

Aimee and I hope that everyone had a wonderful St. Patricks Day today. We appreciate every single one of you for your love and support. We wish you ALL the very best and God Bless!

Today was a great day in the sense that it cleared up a lot of our questions. We spoke in the hall with the nurse practitioner and one of Kayleigh's neonatologist's. The ironic thing is, the doctor that is in the rotation is the same one who was in the delivery room when Kayleigh was born. She may be the same doctor who is able to send Kayleigh out of this hospital. The first topic of conversation was her stomach issues. They are still running tests to determine if this is an infection of some sort that is causing her tummy to blow up again. The good news is Kayleigh is passing things through and the repogle tube is bringing air out of the stomach. The x-ray shows improvement, but they are not going to start her feeds back until she is cleared from any infections. They are leaning towards another urinary tract infection, but we won't jump to conclusions until the tests come back. They won't do any surgery until this tummy issue is cleared up. The gastroenterologist are ...