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I guess Kayleigh has her own way of showing us that this procedure was not supposed to happen. Late last night, before Aimee and I went to bed, Kayleigh had an hypertensive episode. She dropped her sats fairly low, but never spiraled out of control like she normally does. Kayleigh must be getting used to some of the sedation medication because they had to bump up her dosage and switch over to Morphine to really get her to relax. She slowly recovered back to normal. Around 6:30 in the morning, we got a phone call that she had another episode, but this time she spiraled out of control and needed to be paralyzed along with more sedation medication. During this episode, she was not responding like normal and she is currently on a much higher pressure control setting at 100% oxygen. The x-ray came back showing her left lung is collapsing. They have started some treatments to fix it and hopefully Kayleigh can turn things around. We are not sure if this is pneumonia coming back or her elevate...

Since Kayleigh weighed in at 6.4 pounds yesterday, one of Kayleigh's friends mentioned doing a comparison with her (Webkin) bestfriend, "Brittany." To learn more about who Brittany is and how she is such a special friend to Kayleigh, go back to the post on 7/5/08. As you can tell, Kayleigh is much bigger now. Hopefully it won't take her six more months to grow six more pounds. Let's pray for weight gain!!! (When are you going to pray for weight gain ever again??Ha-Ha!) The jg-tube procedure for tomorrow is set in stone! That is if Kayleigh continues to stay at the same prognosis as she was tonight. Aimee and I are to be there a couple hours before so we can walk her down to the operating room. She will be under sedation and possibly paralyzed before she goes down so we do not risk the chance of her having a hypertensive episode. Making sure she was as relaxed as possible was our biggest concern about this whole procedure, but after mentioning it to everyone we com...

Merry Christmas from our family to yours. I sure hope everyone had as much fun with their family as we did. We woke up early this morning and opened up presents here at our house and shortly after that, we went to Aimee's mom's house to celebrate with the whole family. "Thank you so much Nama for doing Christmas at your house this year as it was one less thing we had to stress out about." After that was all said and done, we went to spend Christmas time with sweet Kayleigh. She didn't want to party like everyone else, instead she just slept and slept some more. She is having a much better day since yesterday morning's events. I wasn't able to get any good photos because she was face down, drooling and snotting like a champ! "That's my girl" They have had to suction her out quite a bit today, but it is good that she is getting it all out of her system. The last x-ray showed the lungs are clearing up very well. The right side has actually looki...

Today was a very quiet day for Kayleigh. There was not a whole lot that went on and she slept for most of the day. The only thing they worked on today was lowering her settings, so the high oxygen settings do not do any more damage to the lung tissue than they already have. She is down to the low 40's on the amount of oxygen she is getting, but her other settings (pressure) are still high. If we continue to progress some each day, she will hopefully be off the vent in a week or so. We have not set a time or date as to when they will be doing the JG tube. The x-rays have shown improvement with her pneumonia day after day, so we are so happy to see that clearing up. She got another IV today to receive a blood transfusion due to low hemoglobin count. They had to put it in her head because all the other veins in her arms were taken and her legs have not been very plentiful with good sights. Other than that, it was very quiet and we LOVE quiet!!! When Kayleigh has a good day, we all hav...

Okay Everyone. Here we go!!! Aimee and I both sat down with our cardiologist's nurse practitioner (CNP) tonight and we may have a game plan set in place to get Kayleigh's pulmonary hypertension under control and possibly a one way ticket home. Prayers are the only way through this wild adventure we are about to take, but I am more confident than ever that Kayleigh will succeed. Each task at hand must be completed successfully before the next process can begin and this is not going to be a walk in the park. I spoke last night a little bit about the JG tube that they may be putting in Kayleigh's intestines to help with her reflux/micro-aspirates. Tonight, I felt like our CNP has unlocked the door to Kayleigh's only path home. Thank God for such intelligence. Since Kayleigh has been on two of the best medications to treat her pulmonary hypertension (O2/NO2), it is evident that it is working, but something else is keeping Kayleigh from getting those pressures down. Look at ...